Our Programs
Three ways we support individuals and families affected by TRIP12-related disorders and related neurodevelopmental conditions.
1. Financial Assistance to Families
We've been the family staring at these bills: the $22,000 diagnostic test insurance barely touched, the therapies with no state funding, the equipment nobody reimburses. That's exactly what this program is for — direct financial assistance to qualifying families for medically necessary expenses that are not fully covered by insurance or other assistance programs. Eligible expenses may include:
- Medical and specialist visits
- Occupational, physical, speech, or behavioral therapies
- Adaptive equipment and assistive technology
- Uncovered medical or therapeutic treatments
- Safety-related or developmental support items
Whenever possible, assistance is paid directly to medical providers, therapy clinics, service organizations, or vendors. Where reimbursement is necessary, receipts and documentation are required.
How to Apply2. Service Animal Support
This program exists because of a dog. Our daughter's companion animal put her to bed every night and steadied her anxiety through years without answers — and when we priced a trained seizure-alert service dog for her, the quote came to $30,000. Service animals can be life-changing for individuals with neurological or developmental disabilities, and their cost puts them out of reach for most families. We provide financial support related to the placement, training, and care of service animals that assist individuals affected by disabilities associated with genetic disorders.
Eligible expenses may include training fees, placement costs, or related support services provided by qualified organizations. Applications for service animal support are reviewed using the same criteria and safeguards applied to all of our assistance programs.
3. Education, Awareness & Community Support
When our daughter was diagnosed, there was a single published research paper on her condition — so we bought the textbooks and taught ourselves, one chapter at a time. No parent should have to start from zero. We produce and distribute educational materials and conduct outreach to increase awareness of the TRIP12 gene disorder and the challenges affected families face. Our activities include:
- Educational content distributed online and in print
- Community awareness initiatives
- Small-scale informational and support events
- Resource sharing for families and caregivers
All educational activities are offered free of charge.
Looking ahead
As resources grow, we plan to expand into broader outreach and support for research on genetic and neurodevelopmental disorders conducted by qualified nonprofit institutions.
Help Us Grow