Hope and help for families facing TRIP12‑related disorders
We provide direct financial assistance, service animal support, and education for individuals and families affected by the TRIP12 gene disorder and related neurodevelopmental conditions.
What we do
Rare genetic disorders bring extraordinary costs — therapies, equipment, and treatments that insurance doesn't fully cover. We help carry that weight.
Financial Assistance
Direct help with medically necessary expenses not fully covered by insurance — specialist visits, therapies, adaptive equipment, and more. Paid directly to providers whenever possible.
Learn more →Service Animal Support
Support for the placement, training, and care of service animals that assist individuals with neurological or developmental disabilities associated with genetic disorders.
Learn more →Education & Awareness
Free educational materials, community awareness initiatives, and resource sharing for families and caregivers navigating TRIP12-related and similar rare conditions.
Learn more →Why we exist
We're Isabella's family. It took five years, dozens of specialists, and tens of thousands of dollars in tests before a single Zoom call gave us her diagnosis: a rare deletion in her TRIP12 gene — with no cure, almost no research, and no state program she qualified for. Our community carried us through what insurance wouldn't cover. This foundation is how we carry the next family.
Read Our StoryWhat is a TRIP12-related disorder?
Every cell in your body constantly recycles its own proteins — billions of cells run this cleanup process every day — and the TRIP12 gene helps run it. When part of the gene is missing or changed, the effects reach across development: delays, intellectual disability, speech and language difficulties (some children are largely non-verbal), autism spectrum features, and in some children tremors or seizures. It is rare and only recently discovered, so families face long diagnostic journeys, thin research, and therapies that insurance doesn't fully cover.
How We HelpEvery gift goes further here
With an all-volunteer board and minimal overhead, your donation goes to families — not administration.
Make a Tax-Deductible Gift